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Pam Stephan

Teen With Rare Breast Tumor Conquers Cancer

By , About.com GuideAugust 20, 2012

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Ashley Roby is 14, a high school sophomore, and a breast cancer survivor. Yes, you read that right - a very young teenager has been treated for a rare type of malignant breast tumor. Phyllodes tumors make up only 1% of all cases of breast cancer and those usually occur in premenopausal women who are past their teen years and getting on with their careers and family life. Teenagers are usually dealing with dating, friendship, schoolwork, athletics, and body image issues during high school, so having to come to grips with a rare cancer isn't a standard part of the program.

Give this girl a lot of extra credit: she found the lump herself, she didn't panic right away, and when she noticed unusual changes in her breast she got help from her mother, Kim Dobson. These smart women were more than usually aware of their breast health because Ashley's grandmother passed away two years ago from a different type of breast cancer.

Ashley and her mother consulted Dr. Scott Borinstein, a pediatric oncologist at Monroe Carell Jr. Children's Hospital at Vanderbilt in Nashville, Tennessee. A few days later, Ashley had a lumpectomy. Sometimes a phyllodes tumor can appear to be a large fibroadenoma, which can cause breast pain but is a benign lump. Her surgeon was confident that this mass was not cancerous. But as Ashley began recovering from that surgery, her mother got a phone call at work - the lump was cancer.

Mother and daughter then had some hard decisions to make. Ashley opted for a double mastectomy, with plans for breast reconstruction to be done later on. In February, she had both breasts removed, and next week, she will have breast implant surgery. Kim Dobson has been coping as best as she can, staying strong and keeping her tears to herself. She not only worried about Ashley's health, but also about the financial side of cancer treatments. Kim works at a Sprint retail store, where a fellow employee told her about Sherry's Run, a local nonprofit that provides help for cancer patients. Founded to honor Sherry Whitaker, who fought and died of colon cancer, this organization raises funds that help pay for everything from medical bills to rent to groceries and utility bills.

Ashley was a participant in last fall's Sherry's Run, and she plans to run again on September 8th. That will be just 3 weeks after her implant surgery. This young lady plays basketball and knows how to play as a team member. She knows that it's better to get through cancer with lots of support. Thinking of her grandmother, she said, "I knew I could be strong. I just didn't know if I could be strong enough to get through it. I will make a way."

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Comments
August 21, 2012 at 7:26 am
(1) AnnaGoAnna Wallace says:

Hi,
I thought Ashley, her Mum and Grandmother may be interested in joining a Facebook group set up by patients affected by Phyllodes Tumours “Phyllodes Support Group”. There are a number of young girls in the group (and their parents and grandparents too).
We also have collated a huge number of medical papers, information and reference materials within the group as well as the group members sharing their own experiences.
Do request to join the private group “Phyllodes Support Group” on Facebook. I was diagnosed in 2009 with two malignant Phyllodes and know how important this group has been for me to be able to ask questions and listen to others who have been/are affected by Phyllodes.
Big hugs AnnaGoAnna xx

August 21, 2012 at 2:20 pm
(2) Esme says:

I too was diagnosed with Phlloydes tumor and I’ve been looking for support group its will be a year in Nov when I was Diagnosed mine was malignat and had 6 weeks of radiation.

August 22, 2012 at 4:01 pm
(3) Yucca Ann says:

What a wise beyond her years & courageous young girl this teen is. The saddest story of cancer I ever heard was of a young woman who hadglorious, long & beautiful hair. She opted not to have chemo therapy because she didn’t want to loose her beautiful hair. She died of cancer, & when she died, her hair had been cut as short as possible, to make it less difficult to wash & comb. With cancer, sometimes we sacrifice something we hate to lose just to be able to live.

August 29, 2012 at 5:56 pm
(4) M.E.C. says:

The Phyllodes support group mentioned above is a great resource for any person diagnosed with Phyllodes as well as their family members. With regards to the comment about chemotherapy, Phyllodes is a Sarcoma and there currently isn’t an effective chemotherapy that can be used as a tool for those with Phyllodes. Surgery is the primary treatment.

June 10, 2013 at 9:01 pm
(5) Michelle says:

My 14 year old daughter just got diagnosed with phyllodies tumors there is more than one and she is very confused about the surgery and all. Wish there was more information or better answers for them. God bless you Ashely…

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